Tuesday, July 21, 2015

ALL the Therapies

Last month, I wrote about receiving the diagnoses.  I let it sink in, and started reading books (and websites, and Facebook pages, and blogs...) on all the various issues my son is facing.  I have learned a lot! I also started making the phone calls to start the various therapies that were recommended.

Vision therapy started last week to help correct his convergence insufficiency (CI).  The next 16 weeks will be pretty intense (out of town twice weekly, plus homework), but then it should be over for good.  In three weeks, he will start back to occupational therapy at the same place he went earlier this year, and also add pragmatic speech therapy (social skills).  This is only once a week, but for an indeterminate length of time - could be a year or more, now that the Boy is on an insurance that doesn't arbitrarily limit his visits (woohoo!).

Counseling starts soon - paperwork was filled out today, parent consult next week, then he will start sessions with a counselor who is used to ASD children.  This will help him cope and give us someone local to help guide us along this journey.  This clinic is growing and should be adding other useful opportunities for him in the future, such as social skills groups.

Tomorrow is another visit with the psychiatrist who started it all - all the referrals started with her.  Hopefully, we will get a genetic test (from GeneSite) back at the appointment that will help us know what medications work best with his body, in case we decide to go that route in the future.

Speaking of genetics - we did get one test back.  It was through LineGen and did show an abnormality!  That was a surprise.  He is being referred to a pediatric geneticist at some point so it can be explained, but the paperwork we were sent did a pretty good job.  Its interesting to see that other people with the same micro-deletions have a lot of similar issues, but not all.  My husband and I will likely be tested to see if we carry the same deletions, or if it was a fluke.

His sensory issues have been pretty mild this summer, since I've been focused on getting him plenty of exercise and time outdoors, and limiting school expectations.  (We've been plugging along our homeschool readings, typing and math games, and its been working really well.)  He has had friends over several time, and made new ones at the pool.  In less than a month, though, we will be back to full-time school!

Welcome to the Sensory Blog Hop -- a monthly gathering of posts from sensory bloggers hosted by The Sensory Spectrum and The Jenny Evolution. Click on the links below to read stories from other bloggers about what it's like to have Sensory Processing Disorder and to raise a sensory kiddo!



9 comments:

  1. Thanks for sharing your journey. I know it can feel overwhelming. Sounds like you are getting lots of supportive services. I hope they help :-)

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    1. You're welcome! Yes, it sure was overwhelming at first, but its not been that bad in reality.

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  2. It can be hard to see that your child is STILL YOUR CHILD through all this, he's still himself, you know? Above all I feel they need us to accept them as they are, even as we nurture them - as all parents do, but with ALL the questions, therapies etc -- to be all they can be...

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    1. I had a few moments like that, yes, where all I could see was diagnoses, but I'm good now! One step, one day, one therapy at a time, we will get through it all. So glad that vision therapy, at least, has an end date. :)

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  3. You've jumped right in and it looks like your son is getting some wonderful services. Make sure to take care of yourself too, it can get overwhelming managing and learning everything at once. I look forward to reading your journey and I'm super curious about homeschool.

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  4. One step at a time, mama! You're doing great :)

    Thanks for being a part of the sensory blog hop!

    Jennifer @ The Jenny Evolution, The Sensory Spectrum

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  5. One step at a time, mama! You're doing great :)

    Thanks for being a part of the sensory blog hop!

    Jennifer @ The Jenny Evolution, The Sensory Spectrum

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